Sunday, July 19, 2009
Oh, what do you do in the summertime...
Friday, June 26, 2009
U Can't Touch This
Monday, June 1, 2009
That Kind of Mom
Yes, Peter stopped himself when he noticed the water on the slide. I guess he thought he was already dirty enough.
Sunday, May 3, 2009
The Backfiring of Handy Manny

At the end of February I started Cartoon Campaign 2009. My idea was that if I could get Peter to watch 1 episode of some cartoon in the morning I could have that blissful freedom for at least a short while. So I started poking around the Disney Channel and Nickelodeon for possible candidates. After weighing the pros and cons of the various shows (ie. animation style, colors, characters, age appropriateness, music, storylines, level of annoyingness, etc.) I narrowed it down to 2 shows: Handy Manny on Disney and The Backyardigans on Nickelodeon (yes, I overthink things!). So everyday after breakfast I would sit with Peter on my lap and watch one of those shows. At first we would only watch a few minutes slowly increasing the time daily. Soon Peter showed a definite preference for Handy Manny and would watch an entire episode with me (each episode is composed of two 12 minute segments). Then for a week I sat next to him as Peter watched Hanny Manny, eventually working my way farther from him each day. After about a month of this conditioning, Peter finally would watch 24 minutes of TV everyday by himself. SUCCESS!
Tuesday, April 28, 2009
Make Up Your Mind!

Wednesday, March 4, 2009
And to You February I Bid Adieu
Every Monday and Wednesday Peter has preschool. Unfortunately the preschool is at his EI center (Early Intervention) which is a 20 to 25 minute drive (I spend a lot of time in the car on those days). On Fridays he has a Kindermusik class at EI. Peter is also visited by an EI Specialist twice a month and a SLP (Speech Language Pathologist) once a month. Those things combined with the daily speech therapy and autism therapy we do at home keep Peter and I comfortably active.
Thursday, February 26, 2009
My Chunky Monkey
Tuesday, February 24, 2009
Pete's Party
Peter was a bit confused about everything. And having 10 adults sing Happy Birthday to him was more than he could handle (apparently our singing voices are worse than we thought). But overall I thought it was a success. We were able to spend time with our families, celebrate an adorable little boy, spoil Peter more, and eats lots of cake.
Tuesday, February 17, 2009
Thursday, February 12, 2009
Happy Birthday Peter!
When I was putting together this video there was no question of what song to use. "Starlight" by Muse will always be to me Peter's song; whenever I hear it I always think of him and the weeks following his birth. As many of you know Peter had to stay in the hospital for 3 weeks after he was born. Because of this I was pumping my breast milk every 3 hours around the clock. During the first week I often did my middle of the night pumps on the glider in Peter's unused room in an effort to feel closer to him. One night I decided to listen to my iPod while I pumped to keep me awake. As I sat there with one of Peter's blankets around me, "Starlight" came up on shuffle. Even though I had heard the song before and liked it (I did put it on my iPod) this time it was different. Listening to it I felt closer to my little boy who was miles away from me. I just wanted to hold him in my arms and never let go. Since that night whenever I hear "Starlight" I always think of Peter and how much I love him and what he means to me.
Monday, February 9, 2009
Sleep Wars With Screams and Roars
A much less common sight (and of course I woke him with the camera!)Sunday, January 11, 2009
Photography Skills
Monday, January 5, 2009
First Day of School
Thursday, January 1, 2009
Young McPetey Had A Farm
One of the most prevalent Autism Spectrum behaviors Peter has is his obsessive need/want to order and line objects up. Several months ago he would literally spend an hour moving 6 bottles of haircare products from one location to another on the second floor. He would carefully move the objects, organize them to his liking then immediately pick them up and start the entire process over. He would melt down if someone tried interrupting his process or moved things out of his order. Most of the time he would "play" with his toys this way unless someone was right there making him play with the toys correctly. Peter's doctor and EIS told Ryan and me that we needed to interrupt and prevent Peter from doing this lining up too much. While it's okay for him to do it occasionally for short periods of time it isn't okay for it to make up most of his solitary play. I've been working really hard since October to distract and redirect Peter when he starts lining things up.
Fortunately, Peter has made a lot of improvement; now most days he only does it once or twice for about 10 minutes. Then I bought those cute Little Tikes animals and the temptation was too much. Peter loves lining those animals up. Oops. I've had to hide them and only bring them out for a short time each day. Peter and I have a fun time moving those animals around. I try to make it more interactive by performing stunningly accurate imitations of animal sounds (except for the bunnny; what noise does a bunny make?) and requiring Peter to point and sign. Now if I could only get Peter to think cleaning and organizing the house is fun...
Tuesday, December 30, 2008
I'm a BIG Boy Now!

Sunday, December 28, 2008
Too Busy
I celebrated Christmas (unlike Peter, I had pants on most of the time).
I spent time with family (I didn't want to, but apparently Christmas is a "family" holiday and so I was forced to interact with a bunch of enjoyable and funny relatives that I love—totally unfair!).
I cleaned up Christmas morning chaos (how do a handful of presents create mountains of packaging?).
I played with Peter's new toys (having a kid is awesome—I get to play with toys!).
And I fought to save Princess Peach on my new Nintendo DS Lite! (I have the best husband.)
Wednesday, December 17, 2008
I ♥ Photoshop
Thursday, December 11, 2008
Crap!
Tuesday, December 9, 2008
Oops...Don't Play With That
But tonight I robbed my sweet son of his new companion and evidence of poor taste, by throwing it away (yes, I know I'm the one with the poor taste because I'm the adult who actually paid money for it). I just had this awful thought that even though Peter can't talk yet he might somehow bust out with one of those 4 phrases. Wouldn't it be awesome to record in Peter's baby book that his first words were "You Jerk!" Or wouldn't I love to hear him yell "Back off!" to his pediatrician or tell his nursery leader, "You're fired!" Yep, I certainly couldn't let that happen—I must at least retain the appearance of being a good mom.
Sunday, December 7, 2008
The Angry Drunk
Peter's developmental pediatrician, SLP, and I wondered if part of Peter's severe language delays were caused in part to Auditory Neuropathy. Auditory Neuropathy is a hearing disorder in which sound enters the inner ear normally but the transmission of signals from the inner ear to the brain is impaired. For example, a person with Auditory Neuropathy may be able to hear sounds, but would still have difficulty recognizing spoken words. Sounds may fade in and out for these individuals and seem out of sync. We knew from hearing tests Peter had at birth and at 15 months that he was not hearing impaired. However, he continued to show signs of a hearing loss including severe to profound delays in language, poor speech perception, hypo and hypersensitivities to noise, and difficulties in getting his attention (although in recent months he's been getting better in all these areas).
Fortunately, it is very easy to test for Auditory Neuropathy. A diagnosis requires a normal or positive OAE (that's the simple test they usually give newborns in the hospital) and an abnormal Auditory Brainstem Response (ABR). Peter already had two normal OAEs so he just needed to have a sedation ABR. The test monitors brain wave activity in response to sound using electrodes that are placed on the person's head and ears and it must be performed on a resting/quiet person. And since it is impossible to get a toddler to lay quietly for over an hour toddlers are sedated for the test. Normal sedation causes brain activity to decrease, so toddlers are given a conscious sedation. This combined with prior sleep deprivation allows people to sleep soundly during the test.
Peter finally had the ABR this past Wednesday (after almost 3 months of waiting to get in!). Per the doctor's instructions, Peter could not go to bed until midnight Tuesday night. We then woke him a few minutes before 6 am and gave him 4 ounces of apple juice. Peter was not allowed to have any solid food or milk after midnight, and nothing including water after 6:30. Once Peter was awake we couldn't let him nap for even 5 minutes. I had to sit in the backseat with him on our 50 minute drive to Primary Children's Hospital to keep him awake. We arrived at the hospital at 8:45 am. After being admitted, the nurse put an ID tag on Peter's ankle that he furiously tried to get off.
Up to that point Peter had been incredibly good. When Ryan and I had received the instructions to cut 6 hours out of Peter's sleep the night before and to not feed him in the morning, we thought that Peter would be a nightmare. This is a boy who hates getting up early in the morning (so much like his mother!) and wants a bottle of milk as soon as he is awake. So we were pleasantly surprised when Peter was so calm Wednesday morning (apparently sleep deprivation occasionally has its benefits). Over the next hour we met with a couple of nurses, the audiologist, and the anaesthesiologist to discuss the sedation, test, etc. Peter stayed busy and awake during this hour by playing with the hospital bed in the room. Now he wants a bed with buttons that light up, move the bed, and call a nurse.
At 10 Peter was sedated. Because it wasn't meant to knock him out, I had to rock him to sleep. He fell asleep after about 10 minutes of rocking and listening to me sing (I think he fell asleep to escape my awful voice). At that point I put him in the hospital crib and the nurse hooked him up to various monitors. (I know the picture below is really dark, but I didn't want a flash to wake him up and the photos taken at an higher ISO were too noisy to use.) The audiologist then came in and put two electrodes on Peter's forehead, one behind each ear, and a small earphone in each ear. Then she began the test and Ryan fell asleep.
The audiologist finished the test in under an hour. I immediately knew that the test had gone well because if the test doesn't take the full 90 to 120 minutes that usually means few or no problems were found. After waking Ryan up, the audiologist then gave us the good news: Peter definitely does not have Audiotory Neuropathy and the results of the ABR combined with previous testing rule out any auditory issues! Peter already has enough working against him so we were both very excited and relieved by the results.
Next came the fun part: we had to wake Peter up. The anesthesiologist warned us that it might take a little while for Peter to wake up and that when he did he might act a "little drunk." Their plan was to wake him, give him some juice, and then observe him for 30 minutes up to several hours. They wanted to make sure that Peter wasn't too nauseated, could keep liquids down, and that his gross motor skills were close to normal. So we spent over 15 minutes trying to wake him up (it's amazing what a wet washcloth and picking his nose can do!).
Once he was awake, Peter was one cranky kid. When the doctor said Peter would act drunk, he wasn't kidding. But instead of getting the maudlin drunk or the crazy drunk, we got the angry drunk. Now I should have seen this coming because both times Ryan has come out of anaesthesia since we've been married he's been an absolute beast. He's angry and he swears more in 1 minute than he usually does in 1 year. Peter was pretty much the same (minus the swearing). He cried, screamed, kicked and thrashed. He really wanted to run but considering he couldn't even sit up without falling that was not an option. His equilibrium was completely off and his muscles were like noodles. He refused to drink anything and basically wouldn't do anything but scream and try to get down from the crib or Ryan's arms. The anaesthesiologist decided to go ahead and send Peter home. He said that if he was fighting us as much as he was, he was probably okay. So we headed home with a raging kid and a stack of instructions. Fortunately, Peter went to sleep when we got home. When he woke up that evening he had transformed into a loopy and fun drunk. Lots of staggering, lots of tumbles (don't worry, we kept him away from hard and sharp objects), lots of laughs and lots of goofy grins. Now we just need to convince him midnight is not a reasonable bedtime!



